It is CHF's belief that SUDEP monitors are life saving. We have heard stories from countless families who believe their child's life was saved because they were alarmed - something we didn't have the opportunity to do.From The Epilepsy Foundation
What is SUDEP?
People who continue to have seizures are at greater risk of a number of complications, which is why preventing seizures and other problems is so important. The most serious complications are injuries and of course dying from seizures. This section gives frank information about one of the more common causes of dying from seizures called “Sudden Unexpected Death in Epilepsy”, which is abbreviated SUDEP.
SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. No other cause of death is found when an autopsy is done. Each year, more than 1 out of 1,000 people with epilepsy die from SUDEP. If seizures are uncontrolled the risk of SUDEP increases to more than 1 out of 150. These sudden deaths are rare in children, but are the leading cause of death in young adults with uncontrolled seizures.
The person with epilepsy is often found dead in bed and doesn't appear to have had a convulsive seizure. About a third of them do show evidence of a seizure close to the time of death. They are often found lying face down. No one is sure about the cause of death in SUDEP. Some researchers think that a seizure causes an irregular heart rhythm. More recent studies have suggested that the person may suffocate from impaired breathing, fluid in the lungs, and being face down on the bedding.
Can SUDEP be prevented?
Until further answers are available, the best way to prevent SUDEP is to lower your risk by controlling seizures. Paying attention to managing your seizure medications as best as possible, taking them regularly, and preventing seizures emergencies is all part of this. Learn how to get the best care and decrease your risk for SUDEP.